Two years ago today...
Hi I am Lisa Lum and my younger and only sister Karen (37) died from breast cancer two years ago today.
Time does not heal it just puts distance between the memories of the hospital suite, the pain she suffered, the last days, the giving up of hope for recovery in exchange for acceptance of a new reality of life without Karen.
How are we doing? Life is not as full without her. There is joy mixed with sadness when looking at photos of her. It is hard to hear when the kids say they don't remember her as much. As a family we try and look after each other's pain and sadness. For her friends we try and understand what it is like to have a lost a best friend. And she was a great one!
We try and imagine a life without breast cancer in it and Aunty Karen growing old with the rest of us!
We will walk on Mother's Day - me, my husband Craig, and our 3 kids and we will fundraise to help them find a cure for this disease that has robbed our lives of the joy that was Karen and changed our lives forever.
If you wish to join us and wear a uniform - please contact me - Lisa Lum (Karen's sister) lisa_lum@aapt.net.au. Caps are $20 posted with a tribute card to pin to your shirt. Wear a white tshirt and camel cargos.
If you wish to donate to our team's fundraising efforts a donation does not need to be grand - the cost of a hot chocolate, an espresso martini, a rum and coke, Ralph Lauren polo shirt, Kate Spade cocktail ring, Air ticket to anywhere... Some things that she loved!
http://mdc.mothersdayclassic.com.au/fundraising.php?id=17851
Thanks to everyone who is thinking of our family at this time.
As Karen would say, "It is cryworthy."
A sister with a heavy heart but on a mission to save other people's sisters and Rock Star Aunties!
Lisa Lum
Captain - Karen's Army
Wednesday, April 9, 2014
Monday, April 8, 2013
We remember her...What can we do?
Today we remember Karen - who passed away a year ago today.
We remember her in the way we knew her best - comfortable in her designer shoes and packing a whole life into half the time!
Here are some of my favourite photos of her that remind me how full of life she was. It is really hard not to miss her.
My daughter Lucy has her hands, so does my cousin Melissa which makes me feel like she has left part of her here with us. Hands to hold!
After a year without her and feeling that she made it to Heaven I feel that Heaven is on the other side of an invisible curtain right in front of us.
I often wonder how she feels looking through the invisible curtain and seeing how sad we are.
Would she be sad?
How would she want us to go on?
Sadly - with chocolate?
Sulking - watching Pride and Prejudice?
Or living life to full as she did - whether she could afford to or not?I think we all know the answer but it is not always that easy!
I find solace in action. I need to know that there is something I can do to prevent this happening to someone else's sister.
Last year we reaised $12,700 towards breast cancer research. Last year we did something to help the cause.
This year we are trying to help all over again - with Karen's Army Team walking the Mother's Day Classic in May.
Please sponsor us here via this link.
https://register.eventarc.com/sponsor/view/171214
We are fundraising again to help others.
Please join us or sponsor us - I am walking with my family and many of her friends and our friends.
A donation does not need to be grand - the cost of a hot chocolate, an expresso martini, a rum and coke, Ralph Lauren polo shirt, Kate Spade cocktail ring, Air ticket to anywhere...
So many memories but each one however small will help someone.
If you wish to join us and wear a uniform - please contact me - Lisa Lum (Karen's sister)
Thanks to everyone who is thinking of our family at this time. We are all ok - but as Karen would say, "It is cryworthy."
With love and longing,
Lisa Lum
Monday, March 11, 2013
Karen's Army declares War on Breast Cancer!
Hi I am Lisa Lum and my sister Karen (37) died of breast cancer last year.
My husband Craig, my daughters Lucy and
Daisy and son George are all walking the 4.5km Mother’s Day Classic, Brisbane
on Mother’s Day to raise money for the National Breast Cancer Foundation.
We invite you to join Karen’s
Army to walk with us, and fundraise and help us Declare War on Breast
cancer!
This is the link to the Mother's Day Classic website to register to join us.
http://www.mothersdayclassic.com.au/register-online
Karen was diagnosed just before her 35th birthday and was treated (we thought)
successfully until they found a 1 inch tumour growing in her brain at the time
of her 2 year check up. She received radiation treatment for the brain tumour
and it was not successful. The tumour returned and the cancer infiltrated her
spinal cord and brain stem. She was hospitalised for not being able to walk,
within days could not feed herself and within a month she passed away not being
able to speak or swallow or move. For anyone who knew Karen this was her worst
nightmare. Actually it was even worse than that.
My sister was awesome. She was funny and dry witted and had literally hundreds
of friends who loved her like a sister! She was the best Aunty in the world.
She loved food, her dog Barney, expresso martinis, Bundy Rum, The Reds - in
particular Mr Greg Holmes who came to visit her after her brain tumour
operation and walked her down the aisle as her pall bearer - "We love Greg
Holmes"!, her Mini Cooper, her freedom, her nieces and nephews, her
family, her friends, her home, handbags, clothes and shoes, shoes, shoes!
As her family we still cannot believe she is gone and we are struggling to come
to terms with losing her, trying to work out why she died, not scientifically
but philosophically. Why this is this her story? What will be her legacy?
This is where we will start: Trying to raise money to stop other sisters,
daughters, cousins, mothers, wives and girlfriends from being stripped of life
one sense at a time.
All we can do is raise money for research, remember her and try to save others.
For Karen - there is nothing we can do about the fact that she is gone.
She has never wanted this disease to define her and she has kept an amazing
blog diary of her journey up until she could not longer type about 1 month
before she passed away. Finding humour in my tumour expresses the inexplicable
emotions that challenged her every step of her journey with breast cancer.
Karen,
Your were so brave and strong.
We hope you are at peace.
We feel your presence every day.
We are your Army and we will still fight for you.
We love you Karen and miss you every day.
Your were so brave and strong.
We hope you are at peace.
We feel your presence every day.
We are your Army and we will still fight for you.
We love you Karen and miss you every day.
Lisa Lum (Karen Pandy's big sister)
General
Karen's Army
General
Karen's Army
Community Ambassador
MDC2013
MDC2013
Monday, April 30, 2012
The journey ends
Hi faithful followers of Karen's finding humour in my tumour blog. For those who don't know - Karen lost her battle with her tumour on Easter Monday night April 9th, 2012
She had been in hospitalised a week after her last post as the cancer was aggrivating her central nervous system and she could not longer walk and had minimal strength in both her upper and lower body.
Karen's condition worsened slowly over the last few weeks and throughout her treatment she and we her family were ever hopeful. They changed her treatment plan midway as they feared the original one was not working. Her stay in hospital was filled with visitors, watching MKR, using her phone to keep in touch with as many people as possible until she could not longer text.
She was brave and strong and I don't believe she was scared. It was Good Friday when it was obvious to us her last chance treatment was not working and by Sunday morning she was sleeping without waking up.
Her last night was Monday night and all her family and dearest friends were around her. We had dinner, some wine and sat around her chatting about her and remembering the better times. It felt like the last group of "stayers" after a great party all sitting around the table. I didn't think she would go with a party going on around her. We had to leave the room for the nurses to tend to her and when we got back she had turned her final corner and with us all there around her she passed away peacefully after only a few minutes.
Her funeral was on the Friday 13th April and was a great celebration of her life. She had lived 2 lives in her 37 years and had had a great time. I don't feel she would have had many regrets.
Over 500 people came to say goodbye. Greg Holmes walked her down the aisle as a pall bearer for her. Expresso Martinis were served at her wake. I helped my brother Shaun organise the funeral and wake and know she would have been happy!
I am Lisa, her sister and have been overwhelmed by how she touched so many people throughout her life - through her day to day interactions, inspiration and this blog.
Thanks to everyone who has been so supportive and kind to us over these last few weeks - they have been hard and the hard times are not over.
I am running in the Mother's Day Classic in her honour this year and from next year I will organise a team to walk for the Mother's Day Classic - with our Mother and her army of friends. I will keep her facebook account alive to communicate with her army.
If you would like to donate to Chicks in Pink to help support breast cancer sufferers like Karen please go to
https://register.eventarc.com/sponsor/view/85896/lisa-lum
I have posted her eulogy written by our older brother, Shaun and then by Sam Miller - her friend who represents her Army of friends.
If anyone needs to contact her family - please contact me Lisa Lum, on lisa_lum@aapt.net.au.
Thank you,
Lisa
Eulogy
Whenever I have been called upon to
say a few words at a wedding or a birthday, I would always run my speech past Karen. I could always rely on her to give me her
honest opinion, so I hope she approves of this one.
If there ever was an emotive speech to deliver or story to
be read, in our family, Karen was the only one with enough composure to bring
it home. However, I think Karen would say on this occasion, ‘this is a very cry worthy
situation and it is definitely worth a tear or two million.’
Karen was born on the 11th of September at the Mater
Mother’s, the youngest of four children. Karen was always our baby sister and
she enjoyed a very close relationship with each of her siblings.
We had an idyllic upbringing. We had many days playing together in the
backyard or the pool, mum cooking big family dinners and we were treated to long
beach holidays. Karen used to ride to the Coast in the boot of Dad’s station wagon
with the luggage and the dog. Her mode of transport changed since, Karen bought
her own car and rode in the driver’s seat with the dog.
Karen attended primary school where
she made many friends for herself and her parents. She often fondly recalled
learning about the titanic in year 3 and later on she submitted an essay called
‘No drums and no trumpets’. You would think a statement about Karen’s attitude
towards people ‘banging on’ or ‘trumpeting themselves’. But no, it was a story about
the mysterious murder of Shirley Shirley and just didn’t feature a drum or a trumpet.
She then went on to an all girls high school, where she
learnt the value of true friendship, loyalty and acceptance and Sam Miller will
speak about those days in a moment.
Following school, Karen commenced her
chef’s apprenticeship and went on to complete her training successfully.
The hours were long and included weekend nights. So totally un Karen. She had
said that her intensive training had drained her love of cooking. Ironically
later on, Karen was to become a huge fan and discerning judge of Master Chef
and My Kitchen rules. Watching MKR became such an important part of her evening
routine in her final weeks. Karen never cooked much at home; I suspect she
didn’t like the high pressure of Mum’s Kitchen’s Rules.
Karen then made a brave move to opt
out of cooking and went back to school
externally. With the support of Mum and Dad, she was able to gain a place to
study in Marketing and Public relations. She earned her degree and gained
employment there for a while.
Karen then got a job with an international recruitment agency. Her
talents were soon recognised there and she was selected to be in their world
wide top 50 recruiters which was a tremendous honour and was sponsored to a
conference in Cambodia.
Karen always lived her life in the moment, she lived fully, she
lived freely and she was comfortable in her own skin. She was not encumbered by
a mortgage, was unconcerned by her finances and she had a job that she enjoyed.
She was loved by her family, her army of friends and her colleagues.
Karen was devoted her nephews and nieces as if they were her
own children. I am sure they will greatly miss their Aunty Karen. She deeply mourned
the loss of her new baby nephew, who she’ll now be united with in heaven.
Karen loved her dog. Not everyone,
including me, thought that cleaning up poop was a great thing to be doing
whilst on chemo, but in the end he was a great companion and comfort to Karen.
Karen was the life of the party. Her confident vibrant nature and smile would
light up the room. She could put people at ease with a friendly comment or a
kind gesture. She was very funny. Her
wit could be very dry or self deprecating and she had that big loud crazy
laugh. Making friends came easily Karen
but she treasured each friendship. Whenever you had a conversation with Karen,
you had a sense that she was with you, that she was listening and that she really
cared. She was always at the ready to offer a shoulder to cry on, comforting
words or wise counsel. She literally would drive thousands of kilometres to
offer practical assistance to any of her close friends and family in need. She also
helped feed the homeless at St Vincent de Pauls kitchen, provided counselling
at the refugee centre and took meals to Brisbane’s flooded.
Karen was stylish; she loved designer clothes and shoes. I am told that she
had a pair of Fendy shoes that despite the discomfort they caused, were her
favourites. The point of putting up with that is little lost on me. Karen was
merciless with her critique of my own fashion sense, particularly my recently
retired pair of circa 1990’s aviator sun glasses.
Karen was fearless. I recently reminisced with Karen about one trip up the
coast we did together. Unfortunately, half the way up the Bruce, I ran out of
petrol. It was in the days before any of us had mobile phones. After politely
informing me that she regretted my oversight, she promptly turned on her heal,
took a few paces up the road, stuck out
her thumb and hitched a lift with a passing car. At that moment, I was
wondering how I would explain this to mum and was quite relieved when she reappeared
some time later with a RACQ van.
Karen loved to travel. She was charged with escorting my Grandmother’s ashes to
South Africa and was going to be funded for the journey. Karen being Karen
booked an around the world ticket to Africa via the US, Canada and London.
Apparently, they had a ball. If Granny can guide her through Johannesburg
airport, the Pearly gates will be easy.
Sadly, soon after another trip away,
this time to South America’s Inca trail, Karen’s life imploded with the
discovery of a breast lump which
turned out to be cancer. She wasn’t sure what was worse at the time, the
diagnosis or Lisa in an attempt to cheer her up, took her to see the movie,
Twilight.
Karen’s subsequent surgery, chemotherapy and radiotherapy were a
tremendous ordeal for Karen, our family and particularly my mother. When her
hair fell out Karen was devastated. However, she was able to soon see the funny
side and she planted a picture of Kojak on her facebook page. However, not so
funny was when dad would get the two of us mixed up. Karen carried her families
and friends worries with her optimism and wry sense of humour. Karen was able
continue to work in the weeks between her recovery week and more chemotherapy. She
reclaimed her social life and got her eggs harvested with hopes for starting her
own a family sometime in the future.
Her wit and determination have been
captured forever in her Blog ‘Finding
Humour in my tumour’. It featured as
the cover story on the Brisbane’s City News Magazine (Karen looked very cool on
the cover), and the ABC website’s Health section. I am sure it inspired many women
fighting breast cancer, particularly single women, as well as her family and
friends.
Many of us will remember how Karen
often delighted in playing the Cancer
Card. It would guarantee her the
front seat of the car, get her out of washing up after Christmas dinner and she
used it to get her a picture with Alf from Home and Away.
Karen was a mad Reds fan before it was fashionable and
she never missed a game. Her favourite player for many years was Greg Holmes.
She greatly admired his loyalty to Queensland and his ability to smash ‘em. I
remember when she attended their last game at Ballymore, it was raining and
muddy. It was just a few days post a round of chemotherapy, her immunity was
low, she had a fever and mum was unable to persuade her to stay home. As I
said, Mad. Over the years, I think she was just as passionate about the 3rd
half in the corner bar and then to the 4th on Caxton Street.
Unfortunately, just as Karen was
finishing her chemotherapy, the Global
Financial crisis saw the end of her Brisbane office, and Karen was out of a
job. Karen climbed out of her sick bed and attended about 10 job interviews
before she was employed by the Specialist recruiting firm. . Her employers and the
whole team clearly loved Karen. They regarded her as a dedicated, enthusiastic
and intelligent team member. They tell me her quick wit and charm engaged the
most discerning executive and would often lead to a successful hunt. I understand she entertained the team each
morning with tales of her nocturnal adventures; such as Tuesday trivia,
Thursday Bundy’s, and Friday’s Expresso Martini’s.
Towards the end of last year,
Karen’s Portacath was removed. This was a device via which her chemotherapy
could be delivered. Her hair was growing long again and things were returning
to some normality. A bit niggling neck discomfort and a sudden severe headache and
nausea was the result of the cancer
spreading to her brain which required urgent surgery. Brave Karen bounced
back from the surgery remarkably quickly and she was released from hospital in
a few days.
A major highlight for Karen, in what turned out to be her last weeks
of reasonable health, came just a few days following her homecoming. A friend
had organised a surprise guest for morning tea. Karen writes in her blog ‘when
the doorbell rang, I almost fell over to find Greg Holmes in the doorway with
flowers. It was one of those rare moments in my life when I was stuck for
words. My feelings were a mixture of complete shock and relief that it wasn’t
Alf from Home and Away. Greg was the perfect gentleman but I felt like a bit of
a fraud because I didn’t feel sick enough to warrant such a visit.’ Greg Holmes is here today, and I thank
him for what he did for Karen.
Tragically, the cancer had quickly reappeared and
spread through her spinal cord. She
lost her mobility to walk and use her left arm. A new type of treatment brought
pause to the advancing disease temporarily and thankfully spared her famous
texting thumb which maintained her contact with the outside world. In her final
weeks, Karen always maintained her optimism, grace and dignity despite
increasing discomfort and disability.
I am absolutely devastated by the loss of my sister Karen. She has gone too
soon.
However, there are many things that I think we can be thankful for.
I am thankful for Karen’s thumb
That we got to see the Reds win the final and celebrate together.
That Karen found the humour in her tumour
The tidal waves love and tangible support Karen and our family have received
over the past 2 years, from Karen’s army of friends, friends of the family and
the Church Community.
The precious time we had with Karen and the great memories we have to
cherish.
That she knew how much she was
loved by her family and all of her friends.
That we had time we had to say goodbye. That nothing was left unsaid,
no emotion left unconveyed, that Karen’s suffering
has come to an end and that she is now resting in Heaven.
I am also thankful for;
Mum’s incredible resilience and strength that enabled her to be
in the trenches with Karen for every step of her struggle.
And For Dad’s unyielding belief that Karen would be okay. Indeed
he was right.
I was there with Karen during her last evening on earth. The atmosphere
was like being with the stayers at the end of a party. Karen was surrounded by
her immediate family, Father Jerome, three of her closest friends, mellow
music, pizza and wine. The lights were dimmed and there was the hum of good
conversation (mostly Karen stories). I am sure she loved her send off. Typically
Karen didn’t leave when it was time, she waited until well after the oldies had
left and the youngies were tiring. She held out for one more break through cocktail
and then she was gone.
Karen will be forever young and forever beautiful. We will miss her terribly.
Thanks
Shaun, my name is Sam Miller,
I have been friends with Karen
since grade 8 at Loreto where we bonded outside the Home economics classroom,
by outside I mean literally, we were banished outside, due our Mothers sewing
our animal print pants and us having to unpick the pants, which took an entire
term.
Today the Pandy family asked me
to represent a very important part of Karen’s life, her friends. I stand up
here, representing the “Army” of friends that have gathered today, not to
mention her 299 Facebook friends that Karen treasured and loved during her 37
years of life.
I can honestly say I’ve never
meant anyone with so many friends, but my dear loyal troops, you were all so
important to Karen, in so many ways. During the past few years she thrived on
your love and support.
I’d like to start off by given an
insight into what you all meant to Karen. She would always talk to me about her
friends – new and old. She would never just say “Mary and I”, she would say “My
Friend Mary and I went to lunch for 3 hours and we talked for a further 3 hours”,
hmm the talking for 3 hours never surprised me, but I often felt guilty that I
didn’t know - my friend Mary - as she would be very important to Karen. But I realized over the years for Karen using
the word friend was her way of connecting with people, it put the relationship at
that special level, you had Karen’s respect and she valued you.
Having so many friends was a
gift for Karen, she was so open to meeting new people and was so warm and
comfortable with them. Her social
network was huge, in her blog she would mention how wonderful it was to know
that so many people loved and supported her and this kept her going on many of
her dark days. She took great joy in the
diverse range of friends she had acquired and loved organizing events each
weekend, many of which became adventures. This was exciting to her and made her
life so full. She would go out at least
3-4 times a week, which would exhaust a normal person, but not Karen, I think
this is why she was the faster texter in Australia, when you have over 300
contacts to keep up with you need to be able to text quickly! We are not the
only ones to notice her phone lovathon, My 6 year old daughter made a comment
yesterday that she hopes Aunty Karen can take her phone to Heaven, so she can
text her to see what it’s like!
I always felt she loved having
so many people whom she connected with and who could share many moments with
her. This was Karen’s life and that’s why friends were such an integral part of
who she was.
I remember her 354h
birthday party, it was more than just a birthday it was a celebration of her
strength and courage with her battle against breast cancer. The preparations
began and the arduous task of who to invite was an initial issue. From memory, it was a decided a smaller party
would be best, for most people that would be 20-30 people for Karen it was 90
of her closest friends.
With the arrival of Barney social
events were now scheduled around the outings to dog parks. The inseparable pair held ‘rock
star status’ on Brisbane roads, driving around in Cookie with this Hairy horse.
It was a sight to be seen, with Karen trying to restrain Barney, which was a
difficult task while driving, in many cases people would take photos because it
looked like Barney was driving!
But I would like to bring up a few;
the first one that comes to mind is a story Karen’s faithful friend Karyn told.
It was during the Brisbane floods and it was mayhem, traffic was a nightmare,
Karyn and Mark had just renovated their lovely home at Graceville and the
floods had hit them badly. The first thing that Karen did was jump into Cookie
to try and help, it was an ordeal, a 3 hour journey, but this didn’t deter
Karen, she never once thought about turning around, she wanted to be there to
help her friend.
Ann-Maree talked about the time
Karen flew to Sydney to be by Ann-Maree’s side, Karen had just finished a round
of chemo and was very ill but nothing was going to stop her support her friend
at this time.
Karen was the best person to
pick you up again, her magic smile would light up your heart instantly and her
razor sharp wit was the best cure for any situation. Sometimes that wit was so
fast I would be laughing at the first one liner and miss the others, one day
she said to me, “Mate, keep up, your missing some of my best work.”
Karen’s greatest Love
On
behalf of the army of friends I’d like to finish today by talking about Karen’s
greatest love, her family. Everyone hear
today would know something special about a member of the Pandy family. One of her
favorites was her mock disappointment when George, her nephew,
became old enough to realize that his aunt couldn't be his girlfriend!
She treasured all the little
bits of the kid lives that are important to parents but they were also an
essential part of Karen’s life.
and she would reply, “Why? My parents don’t annoy
me!”
I would like to make a pledge
on behalf of the army that we will continue to support the Pandy family just as
Karen supported all of us.
Ann-Maree responded with
surprise and dismay, “why would I be at
your funeral?”
Karen replied quickly “Nothing why would I be at your funeral?”
Friday, March 2, 2012
Not the news I wanted.
I am not sure where to start with this entry. It has been a devastating week. I had the lumbar puncture on Tuesday. The benefit of having a very active imagination is that the reality of the situation is rarely as traumatic as you had made up in your head. My mum and I headed off to the Mater for the day procedure. The weakness and numbness had gotten so bad that I now need help dressing - so a lucky nurse helped me into my backless gown and the world's biggest paper undies. I am not exaggerating about the undies. They literally came up to my armpits. I could imagine Lady Gaga wearing them with a belt and a pair of thigh high boots. The lumbar puncture was quite an uncomfortable procedure, but not for the reason I would have thought. I have been having some pretty awful toilet issues, so Mama Bear has had me on the stewed prunes. In hindsight, not the best breakfast choice when you are having a procedure done on your lower back. Lying on my belly on the table, I could feel the rumble coming, so I had to clench my bottom as much as I could to save the poor doctor who was about to stick a needle into my back. He kept telling me to relax and I kept thinking to myself 'you really don't want me to'! It is very difficult to keep your back relaxed while clenching your bottom tightly, I would encourage you to try it.
After the procedure, I had to remain flat on my back for 4 hours in hospital and then until lunchtime the next day at home. The time in hospital passed quite quickly as I was kept company by Mama Bear, my sister and a good friend. Now we just had to wait on the results. I did ask what they were testing for and they were looking for any neurological disease and malignant cells. I didn't really give much thought to the malignant cells, I was more worried about the degenerative diseases with no cure. The next day, I was able to sit up and have lunch with mum and my sister, which was a treat, until I threw up at the table. Luckily my sister has 3 kids, so she didn't really bat an eyelid at the table vomit. Mum rang my dad and he came home straight away. Surprisingly after all that lying down, all I wanted to do was sleep. After about 40 minutes, Dad came into my room and told me that it was time to go to the Wesley Hospital. I was a bit confused about this and started to worry when Mama Bear, my sister and one of my brother's also walked in the room. The results of the MRI showed malignant cells in my spinal fluid, which was affecting my central nervous system and causing all these issues. They all hugged me and cried. Instead of my afternoon sleep, I was off to the oncologist and neurosurgeon again.
I was told that I would need chemo directly to my brain, which would require a shunt to be inserted on Thursday and chemo would commence on Friday. I was told the treatment is unlikely to result in a cure, but was about limiting further damage and maintenance. I hope the damage that has already been done can be reversed because I am down to typing with one hand and am making lots of mistakes.
I will continue this blog tomorrow about the operation and the first chemo. The rugby is on tonight and I only have 20 minutes to get prime position on the couch. Go the Reds!!
Sunday, February 26, 2012
Bad news and worse news.
It has been an interesting week. I had been feeling better, apart from the annoying limp which I had developed on Saturday. By Tuesday the limp had developed into pins and needles in my left pinkie and ring fingers and the weakness in my left calf was increasing. I saw my neurosurgeon on Thursday and he suggested getting an MRI done of my spine and neck to rule out anything sinister. I wasn't worried - I thought life couldn't suck that much. I booked the MRI for Tuesday of next week, which would give me enough time to psych myself up for going into that tight white torture tube. When I woke on Friday morning the pins and needles had spread to my entire left arm and my pinkie and ring fingers on my right hand. The weakness in my left leg was also worse; I had to sit down to put my pants on and couldn't push my foot into my shoe. I rang the neurosurgeon on Friday afternoon and left a message for him about the developments. I still wasn't too concerned about it all and headed out with my lovely housemate.
Much to my extreme disappointment, the neurosurgeon rang back to say that I should head into the Mater Private Emergency and have the MRI done immediately. It wasn't quite the Friday night I had planned. Armed with my parents, we headed into the hospital. It felt strange going to the emergency department again, but at least this time I wasn't in my pajamas, I had a bra on and didn't feel like my head was going to explode. Another bonus was that since I was already bald, they didn't have to shave chunks of hair from my head. I had an MRI of my head, neck and spine which took about an hour. Lying in the tight white torture tube, many thoughts ran through my head; such as why do they give you headphones to listen to music when you can't hear it over the bang, bang, bang of the machine? What happens if you have to scratch something? My thoughts also ran into what could be causing these issues. I thought of every degenerative neurological disorder with no cure and thought about how I could deal with that diagnosis. After spending quite a bit of time contemplating this question - I still don't know the answer.
As the MRI was done at 10pm, I was admitted to the hospital and spent the night in a shared room on Friday. I do not find hospitals to be the most peaceful of places, especially when you are in a room with a complete stranger who snores, expectorates loudly and likes to sleep with the light on. I didn't realise I would be over-nighting on the luxurious Ward 9 of the Mater Private, so I wasn't prepared with my ear plugs and sleep mask. I managed to get settled at about midnight and about 10 minutes later, an alarm started going off in the room. This happened about half a dozen times between midnight and 6am, so needless to say, it was not a restful night at all. After the first few times, I managed to work out that the alarm went off every time the lady rolled over, bent her arm and disrupted the flow of her drip. You would think that if I could work it out from behind the grey curtain (which is unfortunately not made of concrete), she could work it out also.
I was wide awake when my neurosurgeon came to visit me early Saturday morning with the results of my MRI from the night before. The good news was that my spine and neck were all clear and they couldn't see anything that would be causing these sensations. The bad news was that the sensations were not caused by swelling or scar tissue, so further tests would be required as would a visit by a neurologist. He then held my hand and put his other hand on my arm and told me that there was other news. I knew this was a bad sign - I could see the cancer face forming. The worse news is that the MRI of my brain showed that the tumour has returned. Apparently I have super human powers that can grow tumours through radiation. To say that I was upset about this news is the understatement of the century. I felt like I had been punched in the guts. I am still struggling to wrap my head around this news, but as always I will keep forging ahead with positivity - I just have to remember where I put it.
I was examined by the neurologist and he recommended that I have a lumbar puncture to determine the cause of these sensations. The thought of having a needle thrust into my spine gives me goose bumps, but it is unavoidable. I just hope the trauma and pain results in a good outcome. Surely life couldn't be that cruel. Once they have the results of the lumbar puncture, they will be able to determine the course of treatment for the new tumour. I will have another visit to the tight white torture tube in a few weeks and see if the tumour has grown, shrunk or disappeared. Depending on those results, I may need another surgery to remove it. I am hoping that it magically disappears as do the pins, needles and numbness.
Once again the news has spread and my family and friends have rallied around me. My eldest brother flew up from Canberra to surprise me - which was awesome. Both brothers came over last night and watched the Reds defeat the Waratahs. Surrounded by friends, family, snacks, beers and rugby - I felt almost normal. That was until I jumped up to celebrate the last minute winning try to the Reds and promptly fell over. Must remember not to do that at the game on Saturday night. I have spoken to quite a few friends and lots of family and there have been lots of tears. Some people have apologised for crying in front of me. I totally endorse crying, this is a very cry-worthy situation. This has come as a devastating blow to me, my family and my friends - I think it is definitely appropriate to shed a tear or two million. I certainly know I have in the last two days. I am just going to focus on getting through each day this week. First is to get through the lumbar puncture on Tuesday and rejoice in the clear results on Wednesday. Also, the first home game of the rugby season is on Saturday and my aim is to get there and get home without falling over.
I would ask the people who are kind enough to read my ramblings to pray to what ever God or religious leader you believe in to pray that the lumbar puncture is clear and this tumour magically disappears and I do not have to have my head sliced open again. If you have a spare minute to squeeze in a fast growing hair request, that would be most appreciated also.
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